sun rays of woman's face

Velocardiofacial Syndrome and the NDIS

Living with Velocardiofacial Syndrome (VCFS), also known as 22q11.2 deletion syndrome, presents unique challenges that can affect various aspects of life. At Beyond Health Services, based in Melbourne, we are committed to providing comprehensive support to individuals with disabilities, helping them navigate and maximize the benefits available through the National Disability Insurance Scheme (NDIS). In this post, we’ll explore how VCFS impacts those living with the condition and how the NDIS can be a pivotal resource in facilitating their day-to-day lives.

Understanding Velocardiofacial Syndrome

VCFS is a genetic disorder caused by the deletion of a small piece of chromosome 22. It is estimated to occur in approximately 1 in 4,000 live births. The symptoms and severity of the disorder can vary greatly, even among members of the same family. Typically, individuals with VCFS may experience heart defects, cleft palate, distinctive facial features, and learning challenges. Other associated traits include immune deficiencies, speech and feeding difficulties, and mental health issues.

Traits and Challenges

Recognizing the traits associated with VCFS is essential for providing effective support. Some commonly observed characteristics include:

  • Heart Defects: Many children with VCFS have congenital heart issues that may require surgical intervention.
  • Cleft Palate: Difficulties with speech and feeding can arise from a cleft palate.
  • Developmental Delays: These may manifest as delayed walking or talking, with possible intellectual disabilities.
  • Social and Communication Challenges: Individuals might experience problems with social interaction and communication.

Understanding these challenges is the first step in tailoring support that addresses the specific needs of each person with VCFS.

Supporting Someone with VCFS

Supporting an individual with VCFS involves a multidimensional approach. A tailored care plan should be developed that can address their medical, educational, and social needs:

  • Medical Care: Regular check-ups with a multidisciplinary team of healthcare providers are vital. This team might include cardiologists, speech therapists, and geneticists.
  • Educational Support: Customized learning strategies can help address learning difficulties. Engagement with special education professionals is often beneficial.
  • Speech and Feeding Therapy: These therapies are crucial, particularly for addressing speech delays and feeding issues stemming from a cleft palate.
  • Psychosocial Support: Encouraging participation in social activities and providing psychological support can significantly enhance quality of life.

How the NDIS Can Support Individuals with VCFS

The NDIS is designed to provide support tailored to the needs of individuals with disabilities, including those with VCFS. Here’s how it can help:

  • Funding for Therapies: The NDIS can fund essential therapies such as speech, occupational, and psychological therapy, which are often required by individuals with VCFS.
  • Assistive Technologies: The purchase or lease of assistive technologies like communication devices can be covered by NDIS plans.
  • Support for Daily Living: Funding can also extend to support in daily activities, helping individuals maintain independence and improve their quality of life.
  • Resources for Families: Training and resources for family members to better support their loved ones are also available under the NDIS.

Services Required and How Beyond Health Services Can Help

Individuals with VCFS often require a comprehensive suite of services. At Beyond Health Services, we’re devoted to providing the following support services in Melbourne:

  • Custom Care Plans: We develop individualized care plans that address the specific needs of each person.
  • Coordination of Services: We assist with the coordination of healthcare and educational services, ensuring seamless integration between different service providers.
  • NDIS Plan Management: Our team helps navigate the complexities of NDIS plan management, ensuring our clients fully utilize their available resources.
  • Ongoing Support and Advocacy: We offer continual support and advocacy to ensure our clients receive the appropriate care and resources they need.

Our team is dedicated to supporting individuals with VCFS and their families, guiding them through the intricacies of the NDIS to leverage every available opportunity for enhancing quality of life.

Contact Us

If you or someone you know is living with Velocardiofacial Syndrome and would like more information on how the NDIS can assist, or if you are seeking support services tailored to this condition, our experienced team is here to help. For more information, please contact us via our website at Beyond Health Services or call us directly


Navigating life with VCFS is undoubtedly challenging, but with the right support and resources, individuals can lead fulfilling lives. Melbourne’s Beyond Health Services is committed to providing the essential support and services to assist every step of the way, empowering individuals to achieve their goals and live a life of dignity and independence.

Back to blog

Contact us